Chemo session 2

Kakes took me today, we arrived in plenty of time to have the bloods repeated.  We still didn't start the treatment till nearly 12.  My nurse today was Jane the same age as me and from Broadway.  I did have lots of contact with other nurses as well.  I was sat opposite a lady I recognised from Chard, she had a reaction to her chemo, which was a bit scary, Jane was very quick to point out that it was not the same chemo that I was having.  Unfortunately because of the change to my appointment we didn't manage to catch up with Barb and Pete.  We got home about 2.30. Had a telling off from mum because I didn't tell her when we got home and she had to ring me.  I just want an occasional day when I don't to speak to her, but she isn't able to cope with that, and it probably sounds unkind, but I am not doing anything to tell her and she isn't doing anything new everyday so we are just talking about the same things day after day.  It is just like groundhog day!  Well I am signing off now and if I am feeling ok tomorrow I will blog how I am feeling, if I don't feel great I will blog in a few days.
ps I ate the best part of half a packet of biscuits, I am going to blame the steroids. ;-)

Me (Kayleigh) and Mattie cutting Mum's hair

Dad helping us both, nearly all gone

Mum looking beautiful in her new dress and short hair

Appointment change

The Beacon Centre called again, they want to change my appointment from 10 to 11.30 tomorrow for my chemo now, that is fine I guess.  I had my bloods done at pre assessment on Monday which were fine, but because it was more than 48 hours before my treatment I have to have them repeated tomorrow before my treatment, I will be gutted if there is a problem and they don't give me my treatment.  The only positive to come out of that will be that I won't be exhausted for Carol's 50th birthday party on Saturday.  Anyway we are not really considering that.  Yesterday I got so fed up with how bad my hair looked and felt, coming out in handfuls everytime I touched my head, so Kakes, Mattie and Rob gave me a crew cut.  I haven't tried my wig on with my short hair yet as I have been cooking Mattie's birthday cake, he is 17 today, and sadly the mini is still poorly on the drive not ready for him to drive, he is losing all his passion for her which is sad, with everything else that he is coping with he needs some happiness.  I was told not to cook in my wig as it will singe.

All day at College

Today was good, I was a bit nervous as it was the first taught session since my chemo, I went to college for half a day last week to get some books and speak to a few other students who helped to get me on task for the current module.  Coped ok with being there all day, and it was the first day that I had seen almost everyone since everyone knew about my diagnosis.  Everyone was really supportive, and that included the lads.  Some people wanted to know, others just treated me, like me!  That is not to say that those who wanted to know didn't treat me like me.  It was good, I had hugs from a few of the guys, they are a great bunch, especially considering I have only known them since September, they are a fantastic addition to my support network.  I will get through this, I will be like Jane Plant and get rid of the secondaries, I know that is rare, but I am going to do it.

I'm Kayleigh, Angie's daughter

Mum said I could add to this blog if I wanted to, or if she wasn't up to it. Thankfully it's the first one today :). She's at college all day, which is a good sign. It might be the longest she's been out since her first chemo. Mum's thinking of getting Dad to shave her hair today. I'm a bit worried I'll turn around and ask him to do mine as well, I'll try not to. I don't have all the nice headscarves that Mum has.

day 2

Have been feeling pretty rubbish again today, really tired, not boding well for Carol's party, maybe I might make an hour if I rest all day both days before.
Have nicknamed the chemo David Haye, so when I struggle to sleep I can send 'Dave' to all the known affected areas. The Gp has signed me off until April which wasn't really what I wanted, but we will see as it is subject to change.

first chemo

Well Tuesday I had a call from the Beacon centre to offer me a chemo session following a cancellation.  At least it didn't give me much time to think about it, though I did worry about the cancellation, I was glad to find out when I got there that the patient was not well enough for that particular session.  The actual session wasn't too bad and I coped with the evening pretty well.  Today I have felt pretty lousy though, although I have felt a bit better as the day has gone on.  I have managed to eat and drink without feeling sick. We shall see how it goes.