Saturday, 26 April 2014

Knocked for six

I had my blood transfusion as planned on Tuesday, after doing very little over the Easter weekend, as I had very little energy.  I had hoped that I was going to be one of those lucky people who were going to skip up the corridor after my transfusion.  I wasn't.  The transfusion itself went ok, had a little bit of a reaction with temperature towards the end of the second bag of blood.  Other than that no real problems during my long day in hospital.
On the way home I started to feel uncomfortable, and really quite unwell.  By the time I got home and hubby took the dog out I took myself to bed with plenty of painkillers, in a fair amount of pain.  I almost took some of my morphine.  Hubby was quite worried.  I slept until well after 7.  I went downstairs then because I was bored and lonely.  I made myself as comfy as possible and sat and crocheted.  It has become my new feel good.  
I got up Wednesday morning feeling a bit better, made an appointment with my GP to talk about return to work.  Then I started to feel rough again.  and by the time I saw the GP I had pain to talk about.  It appears that my liver is so distended now that it is right across my stomach cavity and the pain was probably it pushing against my spleen.  No wonder I have struggled to eat.  The only suggestion, Morphine!  Have managed to avoid it again so far, the GP reckons I have a high pain threshold, she can't believe I am still avoiding the morphine.  Anyway she has agreed to me going back to work for an hour or two once a week.

Luckily I felt much better by Thursday and hubby took me to Weston Super Mare to see the sand sculptures.
The Seaquarium.



Followed by fish and chips on the front, it was lovely, I also came home hungry and had a sandwich, the first day in about two weeks that I ate three meals, only small ones but three anyway.

Friday I was lucky enough to have free VIP passes to the Exeter Food and Drink festival.  I ate loads, well breakfast before we went so I could take my cocktail of meds.  Then samples once we got there, then I had a hog roast roll for lunch, well most of one.  Of course I had to have ice cream.  More samples, and we bought some fantastic duck burgers at the festival so I had one of those with chips for tea.  Oh yes and thick milkshake and crisps for supper.  There was lots of walking up and down hills around the festival, so no wonder today I feel a bit uncomfortable, too much food? And rather tired, a bit too much up and down hill walking?

But a good couple of days, and I have to live and enjoy things while I can.  Hopefully we will get control and I will have plenty of time, but we have to be aware that it might not be the case.

Oh and my fab teacher and friend has found a friend who is willing to let me drive his classic Jaguar around a local air field, need to get myself fit for that.  Another thing to take off my bucket list.

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